Rise and Shine

 If you can force your heart and nerve and sinew
To serve your turn long after they are gone,
And so hold on when there is nothing in you,
Except the Will which says to them: ‘Hold on!’
--If, Rudyard Kipling
 ___________________________

If you or anyone you know has been severely wounded or injured in mind or body and are looking for inspiration and direction, I highly recommend the new Audible release of the book Rise and Shine -- one man's path to navigating the healthcare behemoth -- written by my dear friend Simon Lewis and read by actor Kelsey Grammer. (We have mentioned the book previously here, but this is a new and updated version. and accessible to those who cannot read.)

Here is a clip from the Audible book discussing Traumatic Brain Injury (TBI).

In a terrible instant, Simon went from being a rising Hollywood producer, to learning to speak again via Disney children's films. Following many years of excruciating effort and assistance from an eclectic group of resources and against all odds, he regained his former 150 I.Q. and learned to walk again.

Due to the permanent TBI damage, he has sensorimotor and vision deficits. He calls the ever-present now in which he lives, "flat-time".

But Simon's fortitude, wit, erudition and unflagging courage will make a meet traveling companion for those who are treading the same arduous "hidden path", as he calls it. This book will lend you the courage and insight to bear it out against all odds.

Like Simon himself, Mr. Grammer lends dry humor, a sense of irony and gravitas to this dire yet tremendously inspirational story. As the reader writes on the Audible site:

"It reminds me of a line from Prometheus Unbound by Shelley — 'To suffer woes which hope thinks infinite' — surely Simon's story measures up to that description. That he emerged victorious, in the face of such travail, is a testament to his courage ... [and] is an inspiration to all."

Mr. Lewis is a tireless advocate for clients who are often discharged too early from treatment, to expect more. Through unceasing exploration, he asserts that answers can be found. 

"No one will tell you everything," he writes; of course, the corollary is, "No one knows everything" -- not by a long shot.

Bravo, Simon, and to everyone who is fighting a similar battle.


[cross-posted @ Milpub.]

Rise and Shine

Never, never, never, never give up
--Winston Churchill 

Do not go gentle into that good night.
Rage, rage against the dying of the light
--Dylan Thomas

 Then I pray
Don't take me soon
'Cause I am here for a reason 
--One Day, Matisyahu
_____________________

Traumatic brain injury (TBI) is the signature wound of the recent wars, and there is no quick fix. It is a devastating play-as-you go scenario past the initial triage, the path back to normalcy a no man's land fraught with unseen mines. It is estimated that 400,000 U.S. soldiers currently suffer TBI.

I was impressed recently with Simon Lewis's talk at the first INK conference which was published online in association with the TED conference on his medical journey after suffering TBI and the multiple, often unguessed, internal injuries pursuant to the initial concussive event. While Mr. Lewis, an attorney and Hollywood film producer, suffered his TBI in the civilian world, his experience is readily translatable to that suffered by some of our military readers. Since viewing his talk I have had the pleasure of making his acquaintance, and I believe his message and crusade to protect, restore and improve human consciousness is a vital one.

His injuries were so massive that he was presumed dead at the scene of his auto accident. Mr. Lewis then spent one month in "Glasgow Level Three", the lowest state of coma existence on the Glasgow Coma Scale (GCS) and one from which few emerge. When he did, recovery was a grueling process which took him from trying to comprehend children's animations back today to his pre-accident 150 I.Q. Equally as torturous was the fact that there was no clearly enumerated path back, just a continuous hit-and-miss process of brute force effort and will combined with the occasional welcome serendipity.

Reading his book, Rise and Shine, is an antidote to demoralization and will encourage and enlighten anyone on his hidden path to recovery. Being English, Mr. Lewis employs his gallows humor to good effect. He hits the right tone, and his story is engaging throughout.

A recurrent theme is the dismal reality that he must fight for medical coverage time and again before he can even begin the fight on the bodily level for his recovery. Anyone who has been in his position will understand the daunting challenges which face the patient on every front.

Of special interest to those who have or will undergo cranial reconstruction will be the unforeseen complications surrounding the prosthetic inserts. In addition, the ongoing trauma set up throughout the body following massive concussive damage is often unexpected and not well understood. 

One of his mantras is, "no one will tell you everything"; in fact, the things we are told are often contradictory and potentially damaging. Surviving and thriving seems to hang on a wing and a prayer, many times.

Lewis has made it his mission to raise awareness of the necessity for the medical world to widen their approach to TBI survivors and employ every available modality in order to not lose our most precious asset, consciousness. If you or anyone you know has suffered TBI and is looking for a way, I recommend Mr. Lewis's book. While not a manual for navigating the medical system, it provides one man's clear and stoic efforts to regain the maximal wellness possible for him.

20 years on his recovery continues, and it is his mission to bring the message that there are many unused modalities of treatment -- many which he presents -- and that we should not be satisfied with the often low expectations attached to such diagnoses. 

As he told one interviewer, it seems in America we are satisfied with discharging accident victims after they have achieved a very minimal baseline of function and call that a recovery, with no direction for their future. (Mr. Lewis was discharged once he achieved an I.Q. of 89.)

This is not good enough.